Thursday, January 31, 2008

Home Again with a Healthy Boy

Well, it's 11:00 on Thursday night and ... We're home! What a great feeling.

Roo slept AWESOME last night in the PICU. He went to bed at 11:30pm and slept straight through 'til 5:00am. Then he woke up and the night nurse fed him 4 ounces of pumped milk from the fridge (I slept in a "sleep room," a very thoughtful gesture they provide for parents of kids in the PICU). Then he went back to sleep until 8:00am, so he had a great night of sleep. He was so completely wiped out, I'm sure that he really needed that sleep! (And so did I!...we both slept well.) :-)

We packed up our belongings and said thank you to all the awesome nurses and doctors who helped us over the past two days. And, by 1:30, we were home again. What an unbelievable, even surreal, couple of days.

Still, Roo has a mild cough. We're just going to see him get better and better every day. Unfortunately, Mike is now sick. He may have picked up what Roo had (RSV in older kids and adults is just a plain old cold, nothing nearly as serious) or maybe he picked up some other germ at the hospital. The gunk is just going around this time of year. He's been quarantined to the upstairs and Merrit, Ollie, and I are staying downstairs for now. So, say a prayer for Mike please, that he feels better soon!

After all, this coming Sunday (February 3) is our 12-year anniversary! (Two years ago, we were on the beaches of Cancun right about now...now THAT'S just torture to think about after the couple of days we've just lived through!)

Thank you all again for the prayers and support. Thank you, Melissa, for watching Merrit these last couple days. Thank you, Ann, for sending dinner to our house tonight. Thank you, Angela, for picking us up from the hospital since Mike was sick. Thank you, Janet, for keeping Angela's boy so she could come get us. Thank you to our families and friends who called us so often to check in and find out how Roo was doing. Thank you to everyone who prayed! The list goes on and on! We love you guys and appreciate all the help!

Wednesday, January 30, 2008

Lots to Be Thankful for Today

Today at 3:30 marked 24 hours with no episodes of apnea. It's kind of crazy that no medicines other than caffeine and tylenol have been given to Roo to help him fight this nasty RSV bug. But because it's viral, the hospital says there's not much else we can do but let it run its course.

It was a hard night because Roo wanted to eat and the docs didn't want to give him anything. Apparently the high-flow oxygen can cause babies to get nauseous, vomit, and then aspirate. At a certain point, I just stopped holding him because it would send him the mixed-message that I was going to feed him and he'd turn into me and start rooting like he was getting ready to eat. That was just cruel, so I'd stand next to his PICU crib and talk to him and snuggle without picking him up. Sigh!

The goal with the oxygen for today was to ramp down from the high-flow oxygen to just plain oxygen to just plain old room air. Meanwhile, he needed to go from no-feeds to clear fluids (Pedialite) to breastmilk. Then, they wanted to wean him off the caffeine and, through all of this, continue to monitor him to make sure he keeps breathing.

At about 3am this morning, they turned the flow on the oxygen down halfway and said he could try some Pedialite. He threw up the first attempt but by mid-morning was tolerating it. By lunchtime, he was on plain oxygen and by dinnertime, the respiratory therapist had removed the nasal cannula entirely. The transition to breastmilk went just as well...he tolerated small meals (50 to 70 ccs) well, so we kept ramping up and he did well. Boy, was he happy to eat!!

They also took out his I.V. today because he didn't need any more fluids. He's eating well and they didn't need that quick access for meds that an I.V. provides in an emergency. He is doing so well!

Tonight, no more caffeine so we should get to see how he sleeps without the oxygen or the caffeine. Keep praying! We hope he has another great night!

On that note, we must say how overwhelmed we've been with the outpouring of support, love, and prayers! It is truly a comfort to know that within 30 minutes of our call that literally hundreds of people -- family and friends as well as strangers -- were lifting our little guy up in prayer! Thank you from the bottom of our hearts!

Tuesday, January 29, 2008

Serious Run-In with RSV

This morning, I lived through every mother's worst nightmare. Roo stopped breathing and I had to call 911 while he was limp and turning blue right in front of me.

The day started normally. As Mike and Merrit got in the car (Mike drops Merrit off at preschool on his way into work), I said goodbye and decided that I wasn't going to go to the gym today because Roo has had a mild cough and I felt like he needed his rest. (That was the first of many protections that God had laid out for us in the day ahead.)

I fed Roo at about 9:30 and he dozed off, so I put him in his bouncy seat and went to get dressed, fix my hair, and put on my makeup. About 20 minutes later, he woke up and was fussy so I picked him up and put him in my sling. (Another blessing...he was with me when it happened.) He was content and was quietly sleeping while I checked my email until about 10:30.

That's when Roo woke up with a start and seemed to be retching, like he needed to throw up. I pulled him out of the sling and leaned him forward and he suddenly just went completely limp. Still holding him, I turned him around and looked at him and he was completely lifeless, and starting to turn blue around the lips.

This is hard to even write...I was so scared...I just thank God that Roo is okay and that I'm writing this story with the knowledge that he is okay!!!

So, anyway, I was calling his name and rubbing his head and face. Nothing. I started praying. I grabbed him by the ankles and swung him upside down. Slapped the bottoms of his feet. Nothing. I grabbed the phone and called 911.

The operator dispatched the emergency services and asked me how old the baby was, how long he'd been without oxygen, and a few other questions that I just can't remember. She told me to lie him down on a hard surface and tilt his head back to look for an object in his airway. I think she asked me if he'd had any seizure-like activity. Right about that time, as I was kneeling over him on the dining room floor, I heard the EMS pull up in the driveway. Just then, Roo took a huge gasp in and opened his eyes really wide. Then he started wailing and crying very loudly. I told the operator that he was breathing; she could hear him crying, too. And I told her that the paramedics were at the door.

I went to the door with Roo in my arms and the 911 operator still on the phone. She said we could hang up now that help had arrived. The early responders were here in less than two minutes and the ambulance from the hospital was here about 10 minutes later. During the interval, the early responders put Roo on an oxygen mask and a pulse oximeter. They asked me a lot of questions, too. Roo just kept crying, which was reassuring to hear. I guess he was really scared....all the activity, the strange guys holding him, the mask over his face, the anxiety in the air.

I called Mike. I didn't really know what to tell him yet except that we were going to be taking the ambulance to the hospital and could he pick up Merrit from preschool. He left work right away.

On the way to the hospital, I wanted to nurse Roo to calm and comfort him. (He had been given an IV in his foot and was upset and crying from that.) As he nursed, he stopped breathing again. The EMT stimulated him and he came right back, but not until she and I both watched his heart rate dip down to 50 (it should be between 120 and 160). She said something to the driver and they turned the sirens on and sped up to get us to the hospital more quickly.

At the Hospital
Once we got to the pediatric emergency room, the doctors started another I.V. in his right hand because the one in his foot wasn't flushing and they had to take it out. Thankfully, they got it on the first try. In addition to the I.V. , they put in a high-flow nasal cannula, which forced oxygen into his nose to kind of "force him" to keep breathing. A respiratory therapist also collected a sample of mucous from Roo's nose with a suction catheter (which he didn't like at all) so that the lab could run an RSV test. Roo was fighting all this stuff the whole time, of course. I guess it's only natural. And you can't tell him that they're trying to help.

I was having some major flashbacks to everything that we went through with Merrit when he was a baby. It is so hard to watch your baby crying and fighting when you're the mom and there's just nothing you can do except stroke his head and talk to him!

Things settled down a bit and Roo and I had just had a few minutes to catch our breath when Mike and Merrit came in (it was already 1:30 by this time). Roo seemed to be doing better, which was a relief for all of us. Mike and I spent some time together, going over what had happened and comforting each other and Roo.

We still hadn't heard whether this was RSV or not, but the docs suspected that that's what it was. Unfortunately, by this time, the I.V. in Roo's hand had come out, so they wanted to put in another one. Mike and I didn't think Merrit should watch that, so the boys left for home.

A new nurse came in and tried THREE TIMES -- the left hand and both elbows -- to hit a vein, all while Roo cried and struggled. It was pretty horrible, especially when it was all for nothing. She'd blown three veins and he still didn't have an I.V.! They sent in the nurse who'd successfully put the I.V. in first and she had no choice but to go back to the right hand and try to hit it a little higher up from where the first catheter had been. She got it in, thankfully, and they splinted and taped that arm well to keep the I.V. from coming out again. Next, they needed a urine sample, so they came in to catheterize him. That was painful for him, too.

When all that was over, Roo was exhausted. Since he hadn't eaten since the ambulance ride, I asked the doctor if it was okay to feed him and she said yes. While he was nursing, his heart rate dipped again. I heard it beeping slower so I looked up at the monitor and saw it dropping down to 90, 80, 70. I yelled for the nurse and started stimulating Roo by poking his chest pretty hard, like I'd seen the EMT do in the ambulance. He woke up just as the nurse came in and we watched his heart rate rise again.

Over the next half hour as I held him in my lap (not nursing him now), he did it four more times. He had his shirt off and I could see his chest stop moving. Two nurses stayed in the room with me as we watched it happen over and over, prodding him each time to wake him up.

The pediatric doctor who'd been with us all day came in and said that this seemed awfully serious for RSV and suggested that, while we wait for the RSV results, we do a CAT scan and a spinal tap to rule out other more serious things like brain injury, seizure activity, or meningitis. He also said that he was worried about Roo's airway and that we might be looking at intubating him and putting him on a ventilator if he kept having these episodes. I asked about the RSV results...when would we have them back? Soon, he said. So I asked if we could just delay more procedures that would be painful for Roo until we got the results back. He agreed.

I don't know how much time passed with me watching Ollie's chest and counting his breaths. For a few minutes there I just kind of lost it. My mind started racing and it got away from me a little...I was just kind of thinking that I really didn't know what the worst thing that might happen was. I imagined that the next time he stopped breathing, what if they couldn't bring him back? What if they stood there trying to resuscitate him over and over and then they couldn't do it? How would I tell Mike? How could I possibly find the words to explain what had happened to Merrit? I started shaking and crying and pushed the nurse's call button...I just couldn't be alone in the room. I also called and asked Mike to please come back to the hospital. We had to arrange for someone to watch Merrit for the afternoon and our wonderful friend Melissa didn't hesitate. (We are so blessed with good friends!)

Mike got to the hospital and just after he got there, we got the results back from the RSV test. Yes, that's what Roo had. It's surprising to me that RSV can cause such severe apnea like that! I had no idea! Later this evening, I found this info from the Johns Hopkins website about RSV and apnea in infants:

Acute complications in infants include apnea and respiratory failure. Apnea, as a result of RSV infection, most commonly presents in the first 1-2 months of age, in premature infants and in infants exhibiting moderate to severe hypoxemia. There is limited evidence that RSV may contribute to the occurrence of sudden infant death syndrome (SIDS) in infants older than 3 months of age.

Moved to the PICU, Spending the Night
By about 6:30 or 7:00, we were moved from the E.R. to the pediatric intensive care unit (PICU). At this point, Ollie was getting I.V. fluids and was still on the high-flow oxygen. They'd also given him some intravenous caffeine to keep him stimulated and breathing. His last episode of apnea had been at 3:30, so things were calming down a bit.

Again, it's so weird. Besides a very mild cough, this does not seem like a sick child. At this point, we're just going to spend the night here in the PICU to observe him. He's on a pulse oximeter and monitors that register his respiration rate and his heart rate. The nurses will come in during the night (every four hours) and check his temperature and blood pressure. And we'll just pray that Ollie gets good sleep and continues to improve from here.

The doctors tell us that RSV will run its course in seven to 10 days and that the fourth or fifth days are typically the worst. We figure Roo's cough and overall fussiness started on Saturday (it's Tuesday now), so maybe we're over the hump and have seen the worst of it.

Saturday, January 26, 2008

Playtime with Daddy













Hi Daddy, wanna play?

Thursday, January 17, 2008

Once Upon a Time...

..This was Merrit's baby carseat. Hard to believe, looking at it now!!!














What a ham!

Wednesday, January 16, 2008

Fun with New Expressions


















"Whoo Hoo! That tickles."


















"Aw, shucks..."


















"Hmm, let's see, the square root of 16 is..."


















"Whatchoo talkin' about, Willis?"


















"No, really, just look in my diaper!"


















"Get out'a here! He said WHAT?!"


















"Mom, can I have some milk?"


















"Please, oh please, oh please!"


















"I crack myself up!"

Sunday, January 13, 2008

Camouflage; Noticing the Cats


















Can you find the baby?


















I see arms and legs and face...


















Oh, there he is!













Merrit found him!

Baby Roo is starting to notice Skippy and Jenga. They're curious about him, though not as curious/freaked out as they were when we first brought Merrit home. By this point, not only have they lived with Merrit for five years but they've been around a lot of other kids, too.

Saturday, January 12, 2008

This Week in Pictures


















Daddy dries Ollie off after a bath.


















Now it's Mommy's turn. (Don't you love the monogrammed hooded towel from Aunt Frances and Uncle Junior?)













Ollie is in the co-sleeper, as you can see, which is right next to our bed. (It's awesome!) He watches on in awe as Mike and Merrit wrestle.


















Snuggle time with Merrit.


















Baby Roo on Mommy and Daddy's bed.













He's not sitting up yet, just propped up against the pillows!













All bundled up, ready for an outing to the grocery store.

Friday, January 11, 2008

A Lazy Little Sucker; Naptime Routine

It's true. Ollie is a lazy little sucker. Literally. He dawdles, gets distracted, starts and stops. Then, because he hasn't eaten that much, he's hungry again pretty soon.

So, right now I'm trying to get him to go for at least two hours between feedings. Up until now, I have pretty much let him direct how often to feed, but I'm beginning to think that he's developed the habit of snacking. I don't have a problem with this, really, but I think that at almost 9 weeks of age, he can handle longer spans between feedings.

What else is new? Oh, naptimes...I see a good morning nap and a good afternoon nap starting to emerge. Ollie is taking a good morning nap from about 9:00 a.m. until 11:30 or 12:00. In the afternoon, he takes another good nap from about 1:30 p.m. until about 4:30 or 5:00.

Thursday, January 10, 2008

Happy (Two Months Old) Birthday, Roo!

Ollie's latest trick is that he has started to grab for things. He reached out and grabbed a little plastic toy dangling from the bar of his bouncy seat.



Wednesday, January 9, 2008

Tidbits

Life is beginning to feel a little more normal and the only real news to report is pretty typical newborn stuff: Eating. Sleeping. Diapers. Snuggling.





Monday, January 7, 2008

Goo Goo Ga Ga Giggles

This kid is SUCH a cute little guy, he's happy most of the time, and he has such an irresistible personality.



Sunday, January 6, 2008

Rootin' Tootin' Roo

Can I just say that my cute little eight-week-old baby passes gas like a 41-year-old lumberjack who ate beans-n-franks for breakfast?!

But seriously, I wrote last month that he's fussy and in pain sometimes. Here's what we've figured out...

It's not colic.

It's not reflux.

It's not an allergy to cow's milk protein.

It's as simple as the fact that he gulps air when he eats. To a lesser extent, he also gulps air when he cries, sucks a pacifier, or chews on his hands.

He hiccups. He gurgles. He burps. He farts. (Crude, I know, but little cutesy words like "fluffy," "toot," and "poot" just don't capture the reality of the situation.)

Not to make light of it, because his tummy genuinely hurts...but, c'mon, it's KINDA funny!

The solution: Vigilant burping during and after feedings.

Saturday, January 5, 2008

Naptime













Oh, sweet sleeping baby.

Friday, January 4, 2008

Babyslinger

Two gunslingers walked out in the street
and one said
"I don't wanna fight no more"
And the other gunslinger thought about it
and said
"Yeah, what are we fighting for?

I'm takin' control of my life, I'm takin' control of my life,

I'm takin' control of my life now, right now oh yeah"

Tom Petty's song, Gunslinger, just comes to mind when I see this picture of Mike slingin' Ollie around the house:


















Well, Mike didn't really like getting "busted" (caught on film) wearing the babysling...


















Wow, what a face!!!

And while we're on the topic of awesome rock bands, here's Mike wearing his Police T-shirt and telling Ollie all about 'em.















Like Father Like Son
Check it out...I think this is awesome! Merrit has his bunny and his elephant in a "sling" that he made out of a dress-up scarf! Too cute!

Thursday, January 3, 2008

Fun in the Bathroom Sink!

I have a feeling that this may be the last time that we're able to fit Roo into the bathroom sink for his bath. Water was overflowing the edges of the sink, spilling onto the floor, getting Mommy all wet, and making Roo extra hard to hang on to!

We may have to graduate to the kitchen sink from here on out!

Enjoy the pictures of soapy, squirmy Roo...